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Resources

The American Cleft Palate

Craniofacial Association is an international non-profit medical society of health care professionals who treat and/or perform research on birth defects of the head and face.

Website: http://www.acpa-cpf.org

The Cleft Palate Foundation’s

The Cleft Palate Foundation’s mission is to serve individuals and families affected by cleft lip/palate and other craniofacial conditions by connecting them to team care, providing education, and offering personal support.

Website: http://www.cleftline.org

  • Website offered in Spanish 
  • Publications and resources for both parents and children
  • Videos about how to properly feed cleft babies
  • Children’s books
  • Information on camps and retreats  
  • Letter to teacher

Find a team in Texas https://cleftline.org/find-a-team/

Any Baby Can

Any Baby Can is a non-profit organization dedicated to providing supportive services for the families of children with special health needs ages 12 and under.  They have case management services, parent trainings, sibling support groups, prescription assistance and even a fitness program for children with special developmental needs. 

Website: www.anybabycansa.org

The Children’s Craniofacial Association 

The Children’s Craniofacial Association aims to empower and give hope to individuals affected by facial differences by addressing the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

Website: https://ccakids.org/

  • Information on syndromes 
  • Support groups for all ages

Christian Assistance Ministries 

Christian Assistance Ministries is an agency that helps to meet the basic needs of families in crisis in San Antonio.  They can assist with utility bills, provide food for families and offer counseling services, among other things.  You can call or go directly to their office to request support. 

Website: www.christianassistanceministry.org

Early Childhood Intervention (ECI) 

Early Childhood Intervention (ECI) is a nationwide program available to infants and toddlers, ages 3 years (36 months) and younger who need extra help with their development.  

Website: https://hhs.texas.gov/services/disability/early-childhood-intervention-services

Additional Organizations

Brighton - http://www.brightonsa.org

CHCS - http://www.chcsbc.org

Easter Seals - http://www.easterseals.com

The National Craniofacial Association

The National Craniofacial Association dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.

Website: http://www.faces-cranio.org


Book to help parents better deal with children with facial differences
o Children with Facial Difference: A Parent's Guide. Written by Hope Charkins, MSW. Published by Woodbine House, 1996.
• Information about transportation and over night accommodations to and from treatments
• Scholarships (https://cleftline.org/family-resources/college-scholarships/)
• Get in contact with parents in your area (http://www.mums-network.org
• Financial assistance and advice (http://www.faces-cranio.org/Paying.htm)

Ragan’s Hope is a Dallas-based non-profit organization started by the mother of a little girl with chronic medical needs.  The agency works with families across Texas to provide support, encouragement through cards and letters, assistance with basic needs, meals when a child is hospitalized and a general network of caring through local volunteers. (http://raganshope.org/

San Antonio Food Bank helps to meet the needs of families across San Antonio and South Texas.  They have case management services to assist children and adults in applying for Medicaid, CHIP, Supplemental Nutritional Assistance Program benefits (formerly food stamps) and other programs.  (http://www.safoodbank.org

United Healthcare Children’s Foundation offers grants for children with special medical needs who have private insurance and do not have any other form of insurance.  They can assist with the cost of co-pays, co-insurance and other out-of-pocket expenses.  (https://www.uhccf.org/apply-for-a-grant/

Variety of Texas is an agency based in Dallas that aims to help the families of children with special medical needs who are privately insured.  They provide grants that can help to fund medical equipment, supplies or formula that insurance may not cover.  (http://www.varietytexas.org