Our center offers surgical reconstruction, genetic testing, speech therapy, hearing evaluations, dental and orthodontic treatment, psychological evaluation, and more. Care is coordinated through team clinics and conferences in order to provide the best treatment plan for each individual patient. We are accredited by the American Cleft Palate and Craniofacial Association.
Conditions and Services
At The Children’s Hospital of San Antonio Craniofacial Center, we provide surgical reconstruction and medical care for children who have a medical condition affecting the head or face. Our multidisciplinary care team works together with each family to determine the most effective treatment plan for their child’s needs. Conditions we treat and services we provide include:
- Cleft lip and/or palate: Opening in the upper lip and/or the roof of the mouth
- Nasal alveolar molding (NAM)
- Pierre Robin Sequence
- Treacher Collins Syndrome
- Craniofacial Microsomia
- Microtia: Partial or total absence of the ear
- Craniosynostosis: A type of premature fusing of the skull that inhibits normal growth & development
- Craniosynostosis syndromes: Including Crouzon, Apert, & Pfeiffer Syndrome
What to Expect At Your Initial Team Visit
During your initial team visit, you will be meeting with several dedicated specialists. Our Craniofacial Nurse Coordinator will reach out to you prior to your visit to let you know what to expect, get some initial information, and make your visit more efficient. Because you will be seeing multiple specialists throughout the day, your initial visit will likely take approximately three hours. We want to avoid unnecessary delays or repetition, so don’t forget to bring all of your child’s medical records, including the names of all individuals involved in your child’s health care and all medical reports, x-rays, and CT scans or MRIs.
After your visit, all the specialists will meet in a care conference. This allows for coordination of care and development of an individualized treatment plan. A report with the team’s recommendations is drafted and sent to you as well as your pediatrician.
While you may see some of the individual specialists more frequently depending on your child’s needs, most families usually return for a full team evaluation every one to two years. If you are traveling a long distance and need overnight accommodations, our program coordinator will work with our social worker to help you find options.
DeAnna Roso, RN Craniofacial Coordinator